Monday, 25 January 2010
A proportion of people with Cystic Fibrosis need supplementary oxygen when flying, due to the oxygen levels in the cabin dropping at high altitude. Charges for what is an essential for many, vary greatly, with some airlines such as BA, Cathay Pacific, Emirates, Thomson and Virgin all supplying free oxygen on the advice of a doctor; but others enforcing hefty charges of up to £500 per trip. A quarter of all airlines recently contacted by PHA-UK * do not supply supplementary oxygen at all.
Having done a spot of our own ‘secret shopper research’ we were disappointed not just with the costs some airlines enforce, but at the attitudes of airline employees when trying to arrange the oxygen. Extended periods of time were spent on hold, and some airlines claimed to simply ‘not know’ what to do about getting supplementary oxygen on a flight!
Together with the PHA-UK and the British Lung Foundation, we are working to change this situation. To help, please sign this petition.
*PHA-UK stands for Pulmonary Hypertension Association-UK
Wednesday, 13 January 2010
They begin their challenge on 10th August in Basingstoke and estimate the challenge will take between 10-14 days. They cycle to Snowdon and will complete their first climb (3560ft) before crossing to Northern Ireland to climb Slieve Donard. From there they will cycle to Scotland to climb the highest of the four peaks, Ben Nevis at 4480ft. The final climb is England's highest Scafell Pike before cycling home. In total the ride should cover an approx 1250 miles and a total climb of 4,256 metres.
For more info go to http://www.mycharitypage.com/cackett or www.4peaks4bikes.co.uk
Wednesday, 6 January 2010
Whether you've over-indulged this festive season or are always fit as a flea, join Team CF and Make a Difference!
We have the world's biggest and best running events here in the UK and, with your help, we'd like to make sure that in 2010, we have our biggest and best running team...
Over 35,000 people will take to the streets on 16 May for the fantastic Great Manchester Run 10k.
Entries open at 8.30am on Thursday 7 January and will fill in literally 3 or 4 days - the last 10,000 applications will go into a ballot this year so get your place confirmed early.
The Great North Run half-marathon on 19 September will see 54,000 runners head into South Shields.
Please use your place to run with us and help to see off CF!