How much time have you spent on treatment?

When reading Tim Wotton's blog this week the following really caught our attention.

Tim reckons that over his lifetime he has swallowed 280 tablets every week, which works out at 14,560 a year and 364,000 over the last 25 years.

Also during this time, he's had 10,000 nebuliser sessions, 18,200 physiotherapy sessions, over 50 IV treatments, 600 visits to his chemist and 250 visits to Frimley Park hospital.

We all know CF is a very treatment-heavy condition to live with but these figures really pack a punch. How much time do you think you have spent on treatment over the years? How many tablets do you think you've taken? Do comment on Tim's blog and let us know.

Young, Deaf and CF

Afternoon all

We've just posted a great short trailer on our You Tube page. Film student Holly Cocker has made a documentary about a young man with CF, Pete Franklin, who also has hearing loss. The documentary follows him as he makes the decision whether or not to have a transplant.

Young, Deaf and CF has been accepted into the British Shorts Film Festival in Berlin this month. Keep up to date on the progress of the documentary on Holly's blog http://hollycocker.tumblr.com/, the film website is http://www.youngdeafandcf.tumblr.com

Wembley opticians defeat the Ten Tors!

Congratulations to Rakesh Kapoo, Bhakti Patel, Ananda Sena, Rashid Mahmood, Sonal Parekh, Sherya Ghandi, Kavi Kotchea, who braved the weather and completed a 50 mile trek of the Dartmoor Ten Tors raising £1,277 for the CF Trust last November.

The group of opticians from Wembley took just 2 days to complete the challenge, climbing tors as high as 570m despite the treacherous conditions encountering snow, wind, fog, ice, sun and rain.

The team completed the challenge for some of their young customers who have CF after being impressed with their 'get up and go’ attitude and positive thinking.

Well done to all of you for completing the challenge!

QVC and Honora Pearls to support the CF Trust

On Wednesday 22nd December, the shopping channel QVC will be supporting the Cystic Fibrosis Trust.

Their first ever ‘QVC Cares Day’ will feature a selection of top brands who have chosen to support their favourite charities throughout the day and we are thrilled that Honora Pearls are supporting the Cystic Fibrosis Trust.

This is a great opportunity for that bit of last minute Christmas shopping as well as finding out more about our charity work with regular short film clips showing throughout the day. The days’ event will include a standard programming schedule with airtime allocated for the promotion of our charity as well as the opportunity to link on-air sales with an opportunity to donate also.

‘Honora Pearls’ will feature a wonderful range of jewellery products throughout the day and is generously donating 15% of the purchase price to the Cystic Fibrosis Trust.

Find out more on the QVC website

Happy shopping!

Climb every mountain

Everyone has a mental list of things they'd love to do one day and climbing Mount Kilimanjaro is probably top of the list for a lot of people.

Kilimanjaro is the highest freestanding mountain in the world and also the highest mountain on the African continent at 5,896m. Its snow-capped summit rises high above the dusty African plains with huge permanent glaciers flow down from the summit Uhuru Peak.

Sounds amazing doesn't it?

A group of fundraisers recently took on this challenge for us and did a great montage of photos and video from their trip which you can check out on You Tube. If you're inspired to find out more have a look at our website.

Sam completes amazing challenge

Well done to Sam Tomson and team who cycled 1,000 miles from Calais to Barcelona raising over £5,500 for the Cystic Fibrosis Trust.

28 year old Sam, who has CF, cycled with his friends James Cathcart and Mike Tourle and his dad Colin. His mum Lynne drove the route to provide back-up and carry all his medication.

You can find out more and sponsor the team at www.justgiving.com/calbar2010

Well done Allison!

A HUGE congratulations to the lovely Dr Allison John who won a Pride of Britain award this week. Allison is a real inspiration to the CF community, as despite having all her major organs transplanted, she still fulfilled her dream to become a doctor, qualifying this year.