The CF Trust Blog
Thursday, 26 June 2014

The Next Steps for Combination Therapy and Cystic Fibrosis

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Ed Owen, Chief Executive of the Cystic Fibrosis Trust, discuss how this week's announcement on the ivacaftor and lumacaftor combination...
2 comments:
Wednesday, 25 June 2014

Extracts from a Short and Merry Life - Part Two: Positive Attitude

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Continuing our extracts from Tim Wotton's first book,  'How Have I Cheated Death? A Short and Merry Life with Cystic Fibrosis', ...

What the Vertex Phase III Results Mean

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Following yesterday's announcement from Vertex Pharmaceuticals of the results of the Phase III clinical trial of the ivacaftor and luma...
10 comments:
Monday, 23 June 2014

Extracts from a Short and Merry Life - Part One: Sport & Fitness

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Earlier this month, Tim Wotton published his memoir of living with cystic fibrosis,  'How Have I Cheated Death? A Short and Merry Li...
3 comments:
Monday, 16 June 2014

Reflections From Gothenburg

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After four action-packed days in Gothenburg at the European Cystic Fibrosis Society annual conference, Ed presents his ‘top ten’ reflection...
Thursday, 12 June 2014

A First Time View of ECFS Conference

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Today's blog from ECFS Conference comes from James Barrow, our Head of Public Affairs, who is first time attendee to the event It...
Wednesday, 11 June 2014

Setting the scene for ECFS

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As the first day of ECFS Conference draws to a close, Ed Owen, Cystic Fibrosis Trust Chief Executive, sets the scene for what the next four...
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