The CF Trust Blog
Friday, 27 June 2014

Extracts from a Short and Merry Life - Part Three: Adherence and Commitment

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Ahead of tomorrow's book signing at Waterstones in Wimbledon the final extract from  'How Have I Cheated Death? A Short and Merry L...
Thursday, 26 June 2014

The Next Steps for Combination Therapy and Cystic Fibrosis

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Ed Owen, Chief Executive of the Cystic Fibrosis Trust, discuss how this week's announcement on the ivacaftor and lumacaftor combination...
2 comments:
Wednesday, 25 June 2014

Extracts from a Short and Merry Life - Part Two: Positive Attitude

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Continuing our extracts from Tim Wotton's first book,  'How Have I Cheated Death? A Short and Merry Life with Cystic Fibrosis', ...

What the Vertex Phase III Results Mean

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Following yesterday's announcement from Vertex Pharmaceuticals of the results of the Phase III clinical trial of the ivacaftor and luma...
10 comments:
Monday, 23 June 2014

Extracts from a Short and Merry Life - Part One: Sport & Fitness

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Earlier this month, Tim Wotton published his memoir of living with cystic fibrosis,  'How Have I Cheated Death? A Short and Merry Li...
3 comments:
Monday, 16 June 2014

Reflections From Gothenburg

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After four action-packed days in Gothenburg at the European Cystic Fibrosis Society annual conference, Ed presents his ‘top ten’ reflection...
Thursday, 12 June 2014

A First Time View of ECFS Conference

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Today's blog from ECFS Conference comes from James Barrow, our Head of Public Affairs, who is first time attendee to the event It...
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