The CF Trust Blog
Tuesday, 12 August 2014

Getting Young People Heard

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Today is International Youth Day , a United Nations initiative that raises awareness of important issues affecting young people. The Cyst...
Friday, 1 August 2014

Genomes and Genetics

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Dr Janet Allen, Director of Research & Care, explains why the launch of the 100,000 genome project and the move towards personalised m...

Perspectives on the UK CF Registry

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Yesterday we released the latestdata report from the UK CF Registry , giving an insight into cystic fibrosis and life for those with the co...
Thursday, 31 July 2014

Understanding Median Predicted Survival

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This year’s UK CF Registry Report shows that the median predicted survival for people with cystic fibrosis  is a bit lower this year. To...
2 comments:
Thursday, 17 July 2014

Keeping Cool With Cystic Fibrosis

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As temperatures soar, Public Affairs Officer Lynsey Beswick presents her own guide to keeping cool with cystic fibrosis. So the British...
5 comments:
Wednesday, 9 July 2014

Setting the Parliamentary Agenda on Transplants

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James Barrow, Head of Public Affairs, talks about the success of yesterday's debate on organ donation and transplantation in Westmins...
Monday, 7 July 2014

Seven Things You Learn on the Transplant Waiting List

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Robyn has been on the waiting list for a lung transplant for nearly five months. She takes IV antibiotics to keep her as well as she can ...
5 comments:
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