Tuesday, 12 August 2014
Getting Young People Heard
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Today is International Youth Day , a United Nations initiative that raises awareness of important issues affecting young people. The Cyst...
Friday, 1 August 2014
Genomes and Genetics
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Dr Janet Allen, Director of Research & Care, explains why the launch of the 100,000 genome project and the move towards personalised m...
Perspectives on the UK CF Registry
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Yesterday we released the latestdata report from the UK CF Registry , giving an insight into cystic fibrosis and life for those with the co...
Thursday, 31 July 2014
Understanding Median Predicted Survival
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This year’s UK CF Registry Report shows that the median predicted survival for people with cystic fibrosis is a bit lower this year. To...
2 comments:
Thursday, 17 July 2014
Keeping Cool With Cystic Fibrosis
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As temperatures soar, Public Affairs Officer Lynsey Beswick presents her own guide to keeping cool with cystic fibrosis. So the British...
5 comments:
Wednesday, 9 July 2014
Setting the Parliamentary Agenda on Transplants
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James Barrow, Head of Public Affairs, talks about the success of yesterday's debate on organ donation and transplantation in Westmins...
Monday, 7 July 2014
Seven Things You Learn on the Transplant Waiting List
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Robyn has been on the waiting list for a lung transplant for nearly five months. She takes IV antibiotics to keep her as well as she can ...
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