The CF Trust Blog
Tuesday, 30 September 2014

Cystic Fibrosis Trust research sandpit on adolesence

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Jessica Jones, Policy Adviser at the Cystic Fibrosis Trust, reports back from a 48-hour residential research 'sandpit' devoted...
1 comment:
Friday, 26 September 2014

Cystic fibrosis registries: behind the headlines

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A study in BMJ Thorax has revealed that children and young people with cystic fibrosis in the UK  have poorer lung function than their peers...
Friday, 5 September 2014

Let's Do Lunch!

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All this week the Trust has been trying to r aise awareness about nutrition for children with cystic fibrosis, especially as they all head b...
1 comment:
Thursday, 4 September 2014

Transformational Treatments in Cystic Fibrosis

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Today is  the UK CF Conference , Britain's largest event dedicated to multidisciplinary cystic fibrosis work. We were honoured this morn...
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Tuesday, 12 August 2014

Getting Young People Heard

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Today is International Youth Day , a United Nations initiative that raises awareness of important issues affecting young people. The Cyst...
Friday, 1 August 2014

Genomes and Genetics

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Dr Janet Allen, Director of Research & Care, explains why the launch of the 100,000 genome project and the move towards personalised m...

Perspectives on the UK CF Registry

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Yesterday we released the latestdata report from the UK CF Registry , giving an insight into cystic fibrosis and life for those with the co...
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