Tuesday, 30 September 2014
Cystic Fibrosis Trust research sandpit on adolesence
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Jessica Jones, Policy Adviser at the Cystic Fibrosis Trust, reports back from a 48-hour residential research 'sandpit' devoted...
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Friday, 26 September 2014
Cystic fibrosis registries: behind the headlines
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A study in BMJ Thorax has revealed that children and young people with cystic fibrosis in the UK have poorer lung function than their peers...
Friday, 5 September 2014
Let's Do Lunch!
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All this week the Trust has been trying to r aise awareness about nutrition for children with cystic fibrosis, especially as they all head b...
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Thursday, 4 September 2014
Transformational Treatments in Cystic Fibrosis
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Today is the UK CF Conference , Britain's largest event dedicated to multidisciplinary cystic fibrosis work. We were honoured this morn...
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Tuesday, 12 August 2014
Getting Young People Heard
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Today is International Youth Day , a United Nations initiative that raises awareness of important issues affecting young people. The Cyst...
Friday, 1 August 2014
Genomes and Genetics
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Dr Janet Allen, Director of Research & Care, explains why the launch of the 100,000 genome project and the move towards personalised m...
Perspectives on the UK CF Registry
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Yesterday we released the latestdata report from the UK CF Registry , giving an insight into cystic fibrosis and life for those with the co...
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