Friday, 24 July 2015
Welcome to Hack It Up!
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Yesterday, we launched Hack It Up!, our new online colloboration and innovation platform designed to bring the CF community together so we c...
Tuesday, 21 July 2015
The Drop in Donors: What the organ donation statistics tell us
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Yesterday NHSBT published figures revealing the first overall drop in organ donation in the UK for more than a decade. Public Affairs Mana...
2 comments:
Friday, 10 July 2015
What the DLA ruling means for CF
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Policy Manager Nick Medhurst takes us through Wednesday's landmark ruling on DLA and why it matters for people with cystic fibrosis. On...
1 comment:
Saturday, 4 July 2015
Drawing breath
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The last few days have seen some dramatic breaking news for the cystic fibrosis community, with results from the gene therapy Phase 2b ...
1 comment:
Friday, 19 June 2015
Cystic Fibrosis Comes to EastEnders
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By now, you've either seen or heard that one of the latest storylines on long-running BBC soap EastEnders involves a young girl with cy...
1 comment:
Monday, 15 June 2015
The Breathe With Me Strawfie Challenge
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We've got an amazing dedicated community out there, especially among those of you raising both awareness and funds through not just indi...
Saturday, 13 June 2015
The Power of Us is Global - CF Week 2015
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While we in the UK have been coming together for CF Week 2015 and sharing our stories through the Power Of Us, there has been another imp...
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