The CF Trust Blog
Monday, 24 August 2015

Volunteering at the Cystic Fibrosis Trust

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As part of the Trust's commitment to volunteering, we've had the pleasure of welcoming two interns from the US to our office this S...
Tuesday, 11 August 2015

Charlotte's Story - Facing Up to the Challenge of Adult Disability Benefit

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  Personal Independence Payment (PIP) is the new adult disability benefit, replacing Disability Living Allowance (DLA) for people aged 16 ...
4 comments:
Wednesday, 5 August 2015

'One Born Every Minute' - CF and Pregnancy

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Channel 4's 'One Born Every Minute' tonight (9pm) features Rhiannon Dunn, a mother with CF having her third child. As peo...
8 comments:
Friday, 24 July 2015

Welcome to Hack It Up!

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Yesterday, we launched Hack It Up!, our new online colloboration and innovation platform designed to bring the CF community together so we c...
Tuesday, 21 July 2015

The Drop in Donors: What the organ donation statistics tell us

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Yesterday NHSBT published figures revealing the first overall drop in organ donation in the UK for more than a decade. Public Affairs Mana...
2 comments:
Friday, 10 July 2015

What the DLA ruling means for CF

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Policy Manager Nick Medhurst takes us through Wednesday's landmark ruling on DLA and why it matters for people with cystic fibrosis. On...
1 comment:
Saturday, 4 July 2015

Drawing breath

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The last few days have seen some dramatic breaking news for the cystic fibrosis community, with results from the gene therapy Phase 2b ...
1 comment:
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