Hi again, thankfully it finally feels like summer is on its way, the grass has been mowed for the first time this year and the trampoline has been cleaned down ready for extra physio and fun over the coming months! We bought the trampoline a few years ago thinking it would be a great way for us all to keep fit and might give us all a night off ‘normal’ physio every week – Beth broke her ankle on it after three weeks – sometimes it seems like everything is against you!!
The whole Samsa family went bowling last week, a local carers group put on an event and invited us along, they recognise that sometimes it isn’t only the child with Cystic Fibrosis that needs a break and a bit of support, siblings are affected too. The helplines at the CF Trust (Tel: 0300 373 1000) can offer advice and support for all the family when things gets too much, often putting you in touch with other local networks. I’d forgotten what fun bowling is, competitive mum appeared but it was worth it to beat Harry and Jay in the first game – I lost the second one, badly….
Momentum is building for Cystic Fibrosis Week (8-14 May) it really is going to be a great thing to be involved in this year. In Dunstable we’ve got our annual Bluebell walk in Ashridge Forest, Graham is organising a small golf day (an excuse for a day off work I reckon) and the Nannies are doing a Big Cake Bake, I’d love to hear what you’re planning, maybe I can help? You can email firstname.lastname@example.org The events are coming through thick and fast onto the website now, www.cfweek.org.uk it’s keeping Nigel and Steve, our despatch team, really on their toes getting all of the fundraising materials out.
Catch up again soon,