Tuesday 26 March 2013

Alex Stobbs explains why he supports the Cystic Fibrosis Trust and why he’s looking forward to the future.

Hi, I'm Alex, I have cystic fibrosis and I turned 23 this year, you might remember me from the book about my life ‘A boy called Alex’.

Having left university last summer, I'm now living in London with my two brothers and preparing for life as a musician. My health has fluctuated wildly over the last four years, so this year I'm focussing on getting stable! Without the burden of a degree and the intensity of singing seven services a week in a choir, I seem to be reaping the benefits of a calmer life!

All my life my family and I have tried to support the Cystic Fibrosis Trust as best we can. We are part of thousands all over the country who are constantly fundraising in order to continue the excellent research taking place in the UK and abroad. Such research has meant that positive stories about cystic fibrosis are becoming more and more common. The introduction of Kalydeco has been transformative for many  patients with G551D, some of whom are waiting for a lung transplant.

The re-launch of the Cystic Fibrosis Trust as a brand will undoubtedly raise the profile of the Trust as it bids to continue raising awareness of a disease which has such a devastating effect on so many people. I hope you'll agree that the Trust does outstanding work..I just hope that this continues so that as many people as possible can learn about - and support - their incredible efforts.


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