Thursday 27 June 2013

CF Week 2013: Sam's Blog

Sam appeared in our CF Week campaign in 2011, when he was on the waiting list for a lung transplant. After coming through five years on the waiting list, the operation itself and some post-transplant health scares, he is now enjoying being a teenager and looking to the future.

Hi I'm Sam, I am 14 years old and am one of the feature case studies in this year's CF Week. You can watch my video here.

I was pleased that the topic of CF Week this year is transplantation as this is a theme close to my heart.

I waited for five years for my transplant call to come. I was 13 when my call came and the operation was carried out at Great Ormond Street. When the call came we were blue lighted to the hospital, I remember feeling really excited but really scared at the same time! We got final confirmation of the transplant at 03.00 in the morning.

I was lucky to get my transplant in time and now I'm looking forward to the future. I will be choosing my GCSE options soon; I'm joining in with sports again, going out with family and friends and being a teenager. I can't say it’s been an easy year and we've had some health scares post transplant but I'm here and cystic fibrosis is not gong to stop me.

I am pleased that the Cystic Fibrosis Trust is highlighting the problems for people in getting a transplant in time, and starting a consultation on to how to improve rates of transplant and informed choice for children and adults who find themselves on the transplant list. I hope that everyone gets their call in the end. 

So please get involved with CF Week. I will be doing my own big bounce and there are lots of other ways to raise funds too. Visit for ideas and help the Cystic Fibrosis Trust carry on its work to improve the lives of people like me.

Sam x

1 comment:

  1. Hi, my name is Martha and I am currently writing a 5000 word essay on living with CF, I hope this isn't too forward of me but and I'm really interested in getting people doing just that to answer a couple of questions for me.
    I have a survey at: and it would be super great. All the questions are completely optional and confidential, and there is a full disclaimer on the first page of the survey before answering any questions.
    I would love for you to be able to help me, no worries if not!
    Any queries feel free to direct them to my facebook:
    Thanks so much in advance! :)