Sunday 20 October 2013

All Nations With One Goal

With the North American Cystic Fibrosis over and the 4,000 delegates from around the world making their way home, UK CF Registry Manager Elaine Gunn rounds up the success it has been.

The end of the North American Cystic Fibrosis Conference has arrived after a final day of excellent seminars, workshops and a final plenary session.

It has been a fabulous conference, lots of hard work, early starts and numerous out of session registry meetings but the overall feeling of passion to work together no matter where you come from to ensure people with cystic fibrosis get 'gold standard' care is palpable. The research going on around the world is outstanding and listening to researchers passionately describing their work is amazing. 

For me the use of the CF Registries, not only the US one but the UK Registry, in various talks was fantastic. They offer a wealth of data and it is great seeing it being used.

Tomorrow we start the long journey home. I will miss the mountain view walking to the conference centre and the clear, crisp, sunny weather – but feel excited about what is happening in the world of cystic fibrosis. It is a fight we must win, not just in the UK but around the world. All nations, with one goal

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