Sunday 6 December 2015

Reaching Out From Parliament - Getting CF Heard

The Cystic Fibrosis Trust has been working closely with the Outreach team in the UK Parliament to look at how we can continue to ensure cystic fibrosis and the issues of the CF community remain on the political agenda. As part of this, we're teaming up with Outreach team to host a 'digital discussion' with Ian Austin MP, ahead of a debate on access to precision medicines. Lucinda Blaser of the Outreach Team explains more.

Hi! I’m Lucinda. I work in Outreach at the House of Commons.

I work with communities in their digital spaces to share ways for them to get involved in the work of Parliament and have their say on issues that are important to them. We are trying to break down perceived barriers to engaging with Parliament and one of the ways to do this is for us in Outreach to come to you both in person or digitally!

One of the ways the House of Commons is encouraging public participation with debates that are happening is through a digital debate. Digital debates are an outcome of the Speaker’s Commission on Digital Democracy, as part of their investigation into opportunities digital technology can bring for parliamentary democracy. In their final report it was stated: 

“We believe the public want the opportunity to have their say in House of Commons debates; we also believe that this will provide a useful resource for MPs and help to enhance those debates. We therefore recommend a unique experiment: the use of regular digital public discussion forums to inform debates held in Westminster Hall.”

Digital discussions are a way for people to get involved in a debate and discuss their thoughts and experiences with the MP who has proposed that debate. This is a chance for the public to be heard by MPs taking part in the debate and to find out more about the parliamentary process and what to do after this debate has happened.

Digital debates are opening up the process and helping the public to have their say bringing together information from charities, organisations and the House of Commons Library to one space for the public to discus.

On Monday 8 December  the cystic fibrosis community will have the chance to come together for a digital discussion, to share their stories about what it is like living with CF and what access to drugs means for you. Ian Austin MP will be taking part in the debate, and will use your stories to inform a special debate he is hosting in Westminster a week later, which you will be able to stream online.


Please take part in the digital discussion on Monday 7 December and make sure your voice is heard! 

You can join in the digital discussion with Ian Austin MP over on Twitter from 5-6pm on Monday 7 December by using the hashtag #CFDebate

16 comments:

  1. GREETINGS everyone out there.. My name is Sarah Gomez FROM CANADA i will never forget the help Prophet Ayelala rendered to me in my marital life. i have been married for 5 years now and my husband and i love each other very dearly . after 3 years of our marriage my husband suddenly change he was having an affair with a lady outside,i notice it then i was praying for divine intervention the thing became more serious i told my pastor about it we prayed but nothing happen. my husband just came home one day he pick up his things and left me and the kids to his mistress outside at this time i was confuse not knowing what to do again because i have lost my husband and my marriage too. i was searching for help in the internet, i saw many people sharing testimony on how Prophet Ayelala help them out with their marital problems so i contacted the email of Prophet Ayelala i told him my problem and i was told to be calm that i have come to the right place were i can get back my husband within the next 24hours. He told me what went wrong with my husband and how it happen.that they will restored my marriage. to my greatest surprise my husband came to my office begging me on his knees that i should find a place in my heart to forgive him,that he will never cheat on me again. i quickly ask him up that i have forgiven him.friends your case is not too hard why don't you give Prophet Ayelala a try they work surprises because i know they will help you to fix your relationship with your ex partner. i thank god for using Prophet Ayelala to save my marriage. Contact him via Email: ( Ayelala7demons@gmail.com ) Or Reach him on whatsapp: +2347031894318

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  2. This is the most wonderful thing i have ever experienced. I visited a forum here on the internet on the 17 APRIL 2016, and i saw a marvelous testimony of Tracie Aldana from United States on the forum about the good works DR OSEMU. I never believed it, because have never heard anything about such miracle before. No body would have been able to convince me about it not until DR OSEMU did a marvelous work for me that restored my marriage of 4 years by getting back my divorced wife just as i read on the internet. Am Brooklyn Gray from USA. I was truly shocked when my wife knelt down pleading for forgiveness to accept her back. I am really short of words to use to show my appreciation to DR OSEMU. For his a God sent to me and my entire family for divine restoration of marriage. Contact him now for any kind or help via Email: Doctorokpamenspelltemple@hotmail.com, website: www.doctorokpamenpowerfulspelltemple@webs.com OR call and whats App him on +2348135254384. You can text or call me also for more inquiries +1 (914)-902-7078.

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  3. Dr Itua cure my HIV, I have been a ARV Consumption for 10 years. i have been in pains until i came across Dr Itua on blogs site.I emailed him about my details of my HIV and my location i explained every thing to him and he told me that there is nothing to be scared of that he will cured me, he gave me guarantee,He ask me to pay for items fees so when i'm cured I will show gratitude I did and giving testimony of his healing herbs is what I'm going to do for the rest of you out there having HIV and other disease can see the good work of Dr Itua.I received his herbal medicine through EMS Courier service who delivered to my post office within 5 working days.Dr Itua is an honest man and I appreciate him for his good work.My GrandMa called him to appreciate him and rest of my friends did too,Is a joy to me that I'm free of taking Pills and having that fat belle is a nightmare.you will understand what i'm talking about if you have same problem I was having then not now though.I'm free and healthy Big Thanks To Dr Itua Herbal Center.I have his calendar too that he recently sent me,He Cure all kind disease Like,Cancer,Herpes,Fibromyalgia,Hiv,Hepatitis B,Fibroid,Diabetes,Dercum,Copd ,and also Bring back Ex Lover Back..Here his Contact .drituaherbalcenter@gmail.com Or Whats_app Number +2348149277967

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  4. HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Osasu
    My name is Rosemarie Williams, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now: +2347064365391

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  5. HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Osasu
    My name is Rosemarie Williams, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now: +2347064365391

    ReplyDelete
  6. HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Osasu
    My name is Rosemarie Williams, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now: +2347064365391

    ReplyDelete
  7. How I get back my ex-lover contact Dr. Sam for urgent and fast love spell @ Supremespellcast@gmail.com

    I never believed in spell casting but After 6 years of dating my ex-lover she broke up with me, I still imagine how Dr. Sam brought my ex-lover back to me in just 48 hours. No one could have ever made me believe that there is a real spell caster that really works. Am Cherry by name, I want to quickly tell the world that there is a real online spell caster that is powerful and genuine, His name is Dr. Sam, He helped me recently to reunite my relationship with my ex-lover who left me, When I contacted Dr. Sam he cast a love spell for me and my ex-lover who said she doesn't have anything to do with me again called me and started begging me. She is back now with so much love and caring. today I am glad to let you all know that this spell caster has the powers of bringing lovers back. because I am now happy with my lover, and the most surprising, is that our love is very strong, every day is happiness and joy. and there is nothing like been with the woman you love. I am so happy my love is back to me with the help of Dr. Sam if you have similar problem or you want to fix your broken relationship, stop divorce, get your ex back, get your divorce wife or husband back, I will advise you to contact him ,he is there to help you and put a smile on your face ask he did to me and others. his email: (Supremespellcast@gmail.com Or Supremespellcast@gmail.com)

    His blog> https://supremespellcast.blogspot.com
    WhatsApp/Call him +2347087462033

    ReplyDelete
  8. How I get back my ex-lover contact Dr. Sam for urgent and fast love spell @ Supremespellcast@gmail.com

    I never believed in spell casting but After 6 years of dating my ex-lover she broke up with me, I still imagine how Dr. Sam brought my ex-lover back to me in just 48 hours. No one could have ever made me believe that there is a real spell caster that really works. Am Cherry by name, I want to quickly tell the world that there is a real online spell caster that is powerful and genuine, His name is Dr. Sam, He helped me recently to reunite my relationship with my ex-lover who left me, When I contacted Dr. Sam he cast a love spell for me and my ex-lover who said she doesn't have anything to do with me again called me and started begging me. She is back now with so much love and caring. today I am glad to let you all know that this spell caster has the powers of bringing lovers back. because I am now happy with my lover, and the most surprising, is that our love is very strong, every day is happiness and joy. and there is nothing like been with the woman you love. I am so happy my love is back to me with the help of Dr. Sam if you have similar problem or you want to fix your broken relationship, stop divorce, get your ex back, get your divorce wife or husband back, I will advise you to contact him ,he is there to help you and put a smile on your face ask he did to me and others. his email: (Supremespellcast@gmail.com Or Supremespellcast@gmail.com)

    His blog> https://supremespellcast.blogspot.com
    WhatsApp/Call him +2347087462033

    ReplyDelete
  9. I was diagnosed of Herpes 2years ago and I have tried all possible means to get the cure but all to no avail, until i saw a post in a health forum about a Herbal Doctor(Dr imoloa who prepares herbal medicine to cure all kind of diseases including Herpes, at first i doubted, if it was real but decided to give him a trial, when i contacted Dr imoloa through his Email: drimolaherbalmademedicine@gmail.com he guided me and prepared a herbal medicine and sent it to me via courier Delivery service,when i received the package (herbal medicine) He gave me instructions on how to consume it, i started using it as instructed and i stop getting outbreaks and the sores started vanishing, could you believe i was cured of this deadly virus within two to three weeks and notices changes in my body. Days of using this REMEDY,couldn't believe the healing at first until i see it as my HERPES get cleared like magic Dr imoloa also use his herbal medicine to cure diseases like, HIV/aids, lupus disease, dry cough, fever, malaria, Lyme disease, acute myeloid leukaemia, alzheimer's disease, blood poisoning, measles, kidney cancer, kidney infections, diarrhoea, epilepsy, joint pain, mouth ulcer,bowel cancer, discoid eczema, eye cancer, food poisoning, fibroid, hairy cell leukaemia, mouth cancer, skin disease, lung cancer, liver disease, penile cancer, parkinson disease, arthritis, breast cancer, bone cancer hepatitis A.B.C, Diabetes, fatigue, muscle aches, anal cancer, asthma, Contact this great herbal Doctor today the father of herbalism. via Email: drimolaherbalmademedicine@gmail.com or whatssapp him +2347081986098. and get cured permanently He is real..

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  10. Hello everyone I'm Carolina peter and am here to share the wonderful work Dr tunde did for me. After 4 years in marriage with my husband with 2 kids, my husband started acting weird and going out with other women and showed me cold love, on several occasions he threatens to divorce me if I dare question him about his affair with other women, I was totally devastated and confused until a old friend of mine told me about a spell caster on the internet called Dr. tunde who help people with relationship and marriage problem by the powers of love spells, at first I doubted if such thing ever exists but decided to give it a try, when I contact him, he helped me cast a love spell and within 48hours my husband come back to me and started apologizing, now he has stopped going out with other women and his with me for good and for real. Contact this great love spell caster for your relationship or marriage problem to be solved today via email: babatundesolutioncentre1@gmail.com or call or whatsapp:+2348143581382 Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

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  11. Hello am here to testify of a great and powerful spell caster. my Wife left me and my two kids for a couple months, I tried to beg her even I called her, she didn't pick up when she came back home the 3rd week she told me she wanted a divorce I was so sad I cried all night he left again I was so lonely the next day I was searching for something online when i found a spell caster called DR ADEKUNLE, who have helped so many people with their various issues and problems, so I contacted him with my problems he told me it will take 24hrs and my Wife will be back to me I did everything he told me to do and the next day very early my wife came back kneeling and begging she canceled the divorce we are now happy together all thanks to DR ADEKUNLE
    he also cure
    HIV/AIDS,HEPATITIS,LOW SPERM COUNT,CANCER DISEASES,FIBROID DISEASES,GONORRHEA,GONORRHEA,FALLOPIAN TUBE,PREGNANCY,HERPES,lottery spell.
    he can also help you too, contact him directly if you need his assistance on EMAIL:- adekunle.temple@gmail.com
    or whatsapp him +2349059123256

    ReplyDelete
  12. Hello am here to testify of a great and powerful spell caster. my Wife left me and my two kids for a couple months, I tried to beg her even I called her, she didn't pick up when she came back home the 3rd week she told me she wanted a divorce I was so sad I cried all night he left again I was so lonely the next day I was searching for something online when i found a spell caster called DR ADEKUNLE, who have helped so many people with their various issues and problems, so I contacted him with my problems he told me it will take 24hrs and my Wife will be back to me I did everything he told me to do and the next day very early my wife came back kneeling and begging she canceled the divorce we are now happy together all thanks to DR ADEKUNLE
    he also cure
    HIV/AIDS,HEPATITIS,LOW SPERM COUNT,CANCER DISEASES,FIBROID DISEASES,GONORRHEA,GONORRHEA,FALLOPIAN TUBE,PREGNANCY,HERPES,lottery spell.
    he can also help you too, contact him directly if you need his assistance on EMAIL:- adekunle.temple@gmail.com
    or whatsapp him +2349059123256

    ReplyDelete
  13. Hello everyone out there, help me Thank Dr UGO! My name is MRS LINDA from Netherlands. I am here to give testimony on how I got my ex husband back, my husband left me for no reason 6 Months. He moved in with another woman, I felt like killing myself, my life became very bitter and sorrowful. Then 1 day, a friend of mine told me about a great spell caster that is very good and she said that he told her all about her life history and the problem she is facing, I didn't believe it because I've worked with so many of them and it didn't work. She begged me further so I decided to try this great spell caster called Great Dr UGO. I still didn't believe, but inside me I wanted to give a try and as God will have it, I used the spell solution he gave me and the next day I received a call from my darling husband Romero last month. He apologized and came back to me. I'm very happy now with my family it worked for me and I believe it will work for you too just give him a try and follow up this is a clear truth from a testifier. Thank you Dr UGO once again, if you want to reach him via email:(dr.ugo.temple@gmail.com) 

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  14. thankes to Dr oniha, who cured me of fallopian tube blockage and fibroid. i married for over eight years wthout a child of my own. because of the problem with my fallopian tubbe and fibroid, until i came in conntact with Dr oniha's testimony and recommendations online, on how he has cured and healed so many people of the same illment, and i decided to contact him, and he administered his medicatons on me, and i became pregnant in two monnths. incasse you wannt to reach him for a similar problem, yoou can call or whatsap him on +2347089275769 or email: dronihaspell@yahoo.com

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  15. This is the website I read about Doctor Benson and contacted him to help me get my ex boyfriend back to marry me during the month of December this year and I have come back here to post about him. Doctor Benson will help you solve your problem no matter what you are going through. Posting about a spell caster is very strange to me because I never believed i will be able to say that I was helped by a spell caster in bringing my ex boyfriend back to me after 3 years of no contact. I read about his voodoo spell from other websites and contacted him to help me and in less than 48 hours my ex boyfriend called me and I was happy that he wants to get back to me. We met on Friday and he proposed to me,... It was the most beautiful ring. Please everyone out here, Contact Doctor to solve your problem for you and make you happy with your relationship that is hurting you. Love is the best feeling ever experienced. Email him at drbensonspellcaster09@gmail.com or WhatsApp number:+2348141972381.

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  16. thanks to Dr oniha, who cured me of fallopian tube blockage and fibroid. i married for over eight years wthout a child of my own. because of the problem with my fallopian tube and fibroid, until i came in contact with Dr oniha's testimony and recommendations online, on how he has cured and healed so many people of the same illness, and i decided to contact him, and he administered his medications on me, and i became pregnant in two months. incase you want to reach him for a similar problem, you can call or whatsap him on +2347089275769 or email: dronihaspell@yahoo.com

    ReplyDelete