Another person on the plinth!

Lois-Jane Thompson is going to be on the fourth plinth in Trafalgar Square this Friday at 8am to raise awareness and funds for the CF Trust. She is looking for volunteers to shake CF Trust collection boxes and buckets whilst she is on the plinth - if you are interested please find her in facebook and send her a message!

Big Bounce for the CF Trust

Students and staff at Salford City College, Eccles Centre honed their bouncing skills on Friday 18th September, when they took part in a Big Bounce event which raised over £500 for the CF Trust.

Sarah Haynes, Head of Studies at the Eccles Centre, organised the event as her niece, 11 year old Eleanor Geraghty, has Cystic Fibrosis (CF) and Sarah herself is a carrier of the gene that causes CF.

Well done to all who took part - looks like it was a fun day!

Oxygen on flights

Many of you will already know that we are supporting a campaign by several other charities to end oxygen charges for people with medical condition who want to fly.

At present British Airways, Virgin, Emirates, Thomson and Cathay Pacific do not charge people for oxygen and Easyjet and Flybe allow people to bring their own oxygen on board. However many other airlines are still charging.

If you have had some experience with this please get in touch by emailing gfoy@cftrust.org.uk - we would love to hear your story.

Get your running shoes on for the CF Trust

We still have charity places available for this year's New York City Marathon and the Royal Parks Half Marathon.

The New York City Marathon is an amazing experience for any runner, allowing you to take in all the sights and sounds of the Big Apple including the Statue of Liberty, the Empire State Building and Central Park. It's the world's biggest marathon with around 40,000 runners and always attracts millions of supporters. The event takes place on Sunday 1st November.

Closer to home, the Royal Parks Half Marathon, a relatively new event, offers you the chance to see London's parks at one of the most beautiful times of the year - autumn. The run takes in four Royal Parks and offers spectacular views of Buckingham Palace, the Houses of Parliament, the London Eye, Marble Arch and the Royal Albert Hall. This event is on Sunday 11 October.

Go to http://www.cftrust.org.uk/help/events/ for more info but be quick - we only have guaranteed charity places available until 14 August.

Water Baby Eva

Well done to Eva Higgins, a little person with CF, who has just got her 5 metre swimming badge at only 2 years 1 month old! This means she can swim 5 metres with no aids - very impressive considering she has missed a lot of lessons through being ill and having IVs during the past year.

Eva is pictured above with her swimming instructor.

Jordy Pordy at Edinburgh Fringe

A new play, Jordy Pordy: Taking the Bull by the Horns, will debut at the Edinburgh Fringe Festival this August.

The play is an autobiographical one-man show written and performed by Jordan Herskowitz. The play tells the story of Herskowitz's life as a middle child of two brothers diagnosed with cystic fibrosis, being a Jewish individual growing up in Texas, and performing as a professional mascot.

The show is on from 6-30 August and anyone with a CF connection can buy group tickets at a discounted rate for the opening week only. Tickets for ten or more individuals are £6 pounds. Regular price tickets are £8, £7 concessions.

To book call the Edinburgh Fringe Office at 0131 226 0000 and for more info visit http://www.jordypordy.com/

Any budding Spielbergs out there?

We are looking for lots of videos to favourite on our YouTube channel - anything about day to day life with CF.

You can upload films from your video camera or mobile to YouTube then just send the link to gfoy@cftrust.org.uk . It's quite easy so give it a go if you haven't done it before.

Have a look at some of the videos we've favourited already http://www.youtube.com/cftrust

We look forward to seeing your handiwork, have a good weekend everyone and get filming!