Friday, 20 November 2009

Christmas is coming!


Well the nights are really drawing in now and it's getting colder....which means only one thing, it must be nearly Christmas!

Christmas is a time for eating lots, watching rubbish telly and staying indoors, so all the more reason why you should get in a bit of exercise before the big day and help the CF Trust at the same time.

We are holding lots of Santa Fun Runs all over the country starting next weekend. Everyone who takes part gets a free Santa suit and it really is a great way to get into the festive spirit.

Sign up online now www.cftrust.org.uk/help/events or contact our Events Team for an entry form - 0845 859 1100 or events@cftrust.org.uk


Monday, 2 November 2009

YOUNG SINGER SONGWRITERS TEAM UP TO SEE OFF CF

A charity single and album are set to raise vital funds for the Cystic Fibrosis Trust.

The project has been masterminded by manager and promoter Lee Robson from Rochdale, who wanted to do something for the charity after meeting one of its young ambassadors who has Cystic Fibrosis, Kelli Gallacher. Cystic Fibrosis (CF) is one of the UK’s most common, life-threatening inherited diseases and claims three lives a week in the UK.

Lee said “I decided I wanted to do a single and album to raise money for the charity and have managed to get unsigned artists and bands from all over the world to take part. All songs on the album have been written by the artists themselves or by writers they work with.”

Full details can be found at http://www.faithalbumlaunch.co.uk/

All money raised from the sale of the single and album will help fund research into treating and curing CF. It will also help provide support, advice and appropriate clinical care to the 8,000 babies, children and young adults with Cystic Fibrosis in the UK.

Tuesday, 6 October 2009

Another person on the plinth!

Lois-Jane Thompson is going to be on the fourth plinth in Trafalgar Square this Friday at 8am to raise awareness and funds for the CF Trust. She is looking for volunteers to shake CF Trust collection boxes and buckets whilst she is on the plinth - if you are interested please find her in facebook and send her a message!

Thursday, 1 October 2009

Big Bounce for the CF Trust



Students and staff at Salford City College, Eccles Centre honed their bouncing skills on Friday 18th September, when they took part in a Big Bounce event which raised over £500 for the CF Trust.


Sarah Haynes, Head of Studies at the Eccles Centre, organised the event as her niece, 11 year old Eleanor Geraghty, has Cystic Fibrosis (CF) and Sarah herself is a carrier of the gene that causes CF.


Well done to all who took part - looks like it was a fun day!

Wednesday, 19 August 2009

Oxygen on flights

Many of you will already know that we are supporting a campaign by several other charities to end oxygen charges for people with medical condition who want to fly.

At present British Airways, Virgin, Emirates, Thomson and Cathay Pacific do not charge people for oxygen and Easyjet and Flybe allow people to bring their own oxygen on board. However many other airlines are still charging.

If you have had some experience with this please get in touch by emailing gfoy@cftrust.org.uk - we would love to hear your story.

Tuesday, 4 August 2009

Get your running shoes on for the CF Trust


We still have charity places available for this year's New York City Marathon and the Royal Parks Half Marathon.

The New York City Marathon is an amazing experience for any runner, allowing you to take in all the sights and sounds of the Big Apple including the Statue of Liberty, the Empire State Building and Central Park. It's the world's biggest marathon with around 40,000 runners and always attracts millions of supporters. The event takes place on Sunday 1st November.

Closer to home, the Royal Parks Half Marathon, a relatively new event, offers you the chance to see London's parks at one of the most beautiful times of the year - autumn. The run takes in four Royal Parks and offers spectacular views of Buckingham Palace, the Houses of Parliament, the London Eye, Marble Arch and the Royal Albert Hall. This event is on Sunday 11 October.

Go to http://www.cftrust.org.uk/help/events/ for more info but be quick - we only have guaranteed charity places available until 14 August.

Thursday, 30 July 2009

Water Baby Eva



Well done to Eva Higgins, a little person with CF, who has just got her 5 metre swimming badge at only 2 years 1 month old! This means she can swim 5 metres with no aids - very impressive considering she has missed a lot of lessons through being ill and having IVs during the past year.

Eva is pictured above with her swimming instructor.