Monday 22 June 2009

Your opinions on a CF Trust DVD for children

We’ve had an amazing response on the message boards to the idea of a DVD for children and we’re posting here in case anyone hasn’t seen it.

We plan to produce a new DVD for children explaining Cystic Fibrosis. We would like to get lots of feedback from the CF community before we begin production to ensure that the DVD is appropriate and useful.

The kind of things we would like to find out are: what age your child/children started asking about CF, what sort of questions they ask, are there any questions siblings and friends ask, what are the most difficult questions to answer, and any other things you feel are relevant.

We would also like to hear about what kind of format you think would work best eg cartoons/comic strips vs real people, and whether you think this would be a useful resource overall.

We envisage that the DVD will be for children aged five and up, but again this will depend on the feedback we receive.

Please could you email any comments or suggestions to Jacqueline in the Communications Team on

We will also want to show the DVD to children with CF at various stages of the production process so if you think your child might like to be involved in this, please let me know.

We look forward to your feedback!

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