We’ve just had the second yearly meetings of our research advisory and medical advisory committees. Each one is a group of expert CF scientists and clinicians who give up their time to provide advice on issues affecting the CF community and to review research currently underway. There is also a person with CF and a parent of someone with CF in each group ensuring we’ve considered everything from the family perspective.
Items discussed included work on CF clinical trials in the UK and in Europe, a review of the work of the UK CF Microbiology Consortium, swine flu and the CF Registry – a clinical database of people with CF in the UK.
A lot of the info discussed will make it into CF Today at some point so keep your eyes peeled.
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