The CF Trust Blog

Hi Everyone

Welcome to my first Cystic Fibrosis Week blog! I’m working hard to tell lots more people about the vital work of the Cystic Fibrosis Trust to help people with CF live longer, better lives.

I’ve been a patron of the CF Trust for a good few years now and I’ve been lucky enough to meet lots of remarkable young people living with CF. I’m always amazed at their positive nature and strength. Like Kerry Thorpe - she’s awaiting a lung transplant and yet still finds time to keep people up to date with her blogs and news as well as fundraising. Kerry is truly inspirational.

One thing that always strikes me about CF is that it affects people in so many ways. Like Bea who was diagnosed in her 30s, when her own Son was found to have CF at birth. What a challenge that must be, Mother and Son both with CF.

Meeting lots of different people with CF has inspired me to get involved and raise funds for the great work of the CF Trust. This year I’m joining RAF Brize Norton in their World Record Attempt for the largest number of people on Space Hoppers on 2 May. I can’t wait to get bouncing and there’ll even be a live link to the troops in Afghanistan! And I need to remember my ear plugs as I’ll be joined by the amazing Brian Blessed.

I know there’s loads of things going on during the week, from multiple Skydives, Big Cake Bakes, charity walks and much more.

I know by joining in the fun, I’m raising vital funds for the CF Trust to help find a treatment and support the best clinical care.

If you want to do your bit too, you can make a donation or visit www.cfweek.org.uk for some brilliant fundraising ideas. Please follow the CF Trust on Facebook and Twitter. I am really proud to be a part of Team CF and have no doubt that once again CF Week will be a huge success.

Lots of good wishes for a fantastic week!

Ben x