Rhiannon tells us in her own words how she manages the balance of CF and parenthood.
The hours, days and weeks simply bleed into one another since becoming a mother to three beautiful, strong-willed and noisy children, but that's what I always dreamed of so I couldn't possibly complain… well maybe once in a while, when I realise I'm drowning but not from my cystic fibrosis!
I was born in 1988 and was diagnosed with cystic fibrosis
(double DF508) through a sweat test at eight months’ old due to “failure to
thrive”. It was good to get the diagnosis as my mum couldn't take being called
an over-protective mother by doctors and now I have learned myself that a
mother’s intuition is real.
As
a child I had both hospital admission and home IV therapy and I always had
access to good nutrition even though I struggled gaining weight. Then I hit my
teens, at 15 I met my husband and we have been childhood sweethearts ever
since. We have been together 11 years this year and I'm lucky to have him as he
is supportive and there right by my side through CF and the journey that is motherhood.
Being
a mother to three young children (and don't forget the three cats!) and having
cystic fibrosis along with diabetes is tough; I won't lie or sugar coat
anything. The overwhelming loving motherly instinct I always feel is always
tainted by guilt of deciding to bring a child into a world where I know I may
not be here to help see and nuture them right through, due to the life
expectancy of a CF patient, but then I have never been one to let CF get in the
way.
I
have always been bold, confident and wanting to prove people wrong, so we took
the marriage and parenthood route & never looked back.
Our
daily routines are more time consuming, demanding and nonstop, more than ever
on top of my medical needs, and it takes good, sound management to juggle
everything so it's home IVs through a portacath. Online groceries delivered to
our front door and plenty of take away dinners have become the norm as
something has to give, right?
Our
home? How do I keep that clean? I don't: I had to admit defeat and bring in
extra help and hire a cleaner otherwise I would be 10 feet under! I'm on the go
16 hours a day, juggling CF and three young children, the novelty of school
runs has well and truly worn off, I can tell you that for a fact.
Believe
when I say babies are easy but school-age children and driving across the city
for extra-curricular activities, play dates and not to mention their own
appointments when you have a child with their own disability, are things I
didn't plan for. But I'm thankful all the same, I have the opportunity and
privilege to have this life; I'm a very luck lady indeed.
We
decided to agree to be filmed for Channel 4’s ‘One Born Every Minute’ series seven
to raise awareness of CF, empower and offer reassurance to women who have the
same genetic illness as me and to get that out to the public, so to do that,
what better way to get people’s attention than to get naked on TV!
So I
hope you all enjoy watching me losing my dignity on national TV because I know
we had a fantastic experience recording it and would do it all over again.
Ps
not really - my husband’s booked in for a vasectomy for two weeks’ time, ha! Three
babies is more than enough!
Learn more about issues around cystic fibrosis and pregnancy, including fertility.
Learn more about issues around cystic fibrosis and pregnancy, including fertility.
You're wonderful. X
ReplyDeleteWe watched the programme because you were going to be on. My hubby is 58 on Sunday with CF. We both shed a few tears :) You and your hubby were great xx
ReplyDeleteYou are an inspiration, congratulations to you and your beautiful family. You have given hope to many.
ReplyDeleteYou are such an inspiration! Such a beautiful episode to watch, thank you for allowing us to share your special moment!
ReplyDeleteI pray you have a long and beautiful future with your family.
Just watched your episode in Australia, your story provided hope and courage. Thanks for sharing.
ReplyDeleteJust watched your episode in Australia, your story provided hope and courage. Thanks for sharing.
ReplyDeleteYesterday ik watched the episode in Holland and i was in tears.You are such a positive,strong woman and your husband is the best,what a lovely couple you two are.I wish you and your family all the best and a long life together.
ReplyDeleteI really like your writing style, great information, thankyou for posting. pregnant miracle
ReplyDelete