The Cystic Fibrosis Trust has been working closely with the Outreach team in the UK Parliament to look at how we can continue to ensure cystic fibrosis and the issues of the CF community remain on the political agenda. As part of this, we're teaming up with Outreach team to host a 'digital discussion' with Ian Austin MP, ahead of a debate on access to precision medicines. Lucinda Blaser of the Outreach Team explains more.
Hi!
I’m Lucinda. I work in Outreach at the House of Commons.
I
work with communities in their digital spaces to share ways for them to get
involved in the work of Parliament and have their say on issues that are
important to them. We are trying to break down perceived barriers to engaging
with Parliament and one of the ways to do this is for us in Outreach to come to
you both in person or digitally!
One
of the ways the House of Commons is encouraging public participation with
debates that are happening is through a digital debate. Digital debates
are an outcome of the Speaker’s Commission on
Digital Democracy,
as part of their investigation into opportunities digital technology can bring
for parliamentary democracy. In their final report it was stated:
“We believe the public want the opportunity to have their say in
House of Commons debates; we also believe that this will provide a useful
resource for MPs and help to enhance those debates. We therefore recommend a
unique experiment: the use of regular digital public discussion forums to
inform debates held in Westminster Hall.”
Digital
discussions are a way for people to get involved in a debate and discuss their
thoughts and experiences with the MP who has proposed that debate. This is a
chance for the public to be heard by MPs taking part in the debate and to find
out more about the parliamentary process and what to do after this debate has
happened.
Digital
debates are opening up the process and helping the public to have their say
bringing together information from charities, organisations and the House of
Commons Library to one space for the public to discus.
On
Monday 8 December the cystic
fibrosis community will have the chance to come together for a digital
discussion, to share their stories about what it is like living with CF and
what access to drugs means for you. Ian Austin MP will be taking part in the
debate, and will use your stories to inform a special debate he is hosting in
Westminster a week later, which you will be able to stream online.
Please take part in the digital discussion
on Monday 7 December and make sure your voice is heard!
You can join in the digital discussion with Ian Austin MP over on Twitter from 5-6pm on Monday 7 December by using the hashtag #CFDebate
Registered Company No. 3880213
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ReplyDeleteMy name is Rosemarie Williams, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now: +2347064365391
HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Osasu
ReplyDeleteMy name is Rosemarie Williams, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now: +2347064365391
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ReplyDeletehe also cure
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Hello am here to testify of a great and powerful spell caster. my Wife left me and my two kids for a couple months, I tried to beg her even I called her, she didn't pick up when she came back home the 3rd week she told me she wanted a divorce I was so sad I cried all night he left again I was so lonely the next day I was searching for something online when i found a spell caster called DR ADEKUNLE, who have helped so many people with their various issues and problems, so I contacted him with my problems he told me it will take 24hrs and my Wife will be back to me I did everything he told me to do and the next day very early my wife came back kneeling and begging she canceled the divorce we are now happy together all thanks to DR ADEKUNLE
ReplyDeletehe also cure
HIV/AIDS,HEPATITIS,LOW SPERM COUNT,CANCER DISEASES,FIBROID DISEASES,GONORRHEA,GONORRHEA,FALLOPIAN TUBE,PREGNANCY,HERPES,lottery spell.
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ReplyDelete