Tuesday 31 March 2009

New booklet on CF and relationships

Cystic Fibrosis and Relationships is a new booklet that has been written by two young women with CF, Jacqueline Didsbury and Emily Thackray. They interviewed about 60 people with CF and the booklet is a collection of real life experiences covering various aspects of relationships, such as when to tell your partner about your CF, moving in together, meeting the parents and starting a family. You can download the booklet from the following page on our website.


Thanks Jacqueline and Emily!

Wednesday 25 March 2009

Well done William!

We recently had a competition to design a Christmas card which will be sold to raise money for the CF Trust.

We had lots of great entries and it was very difficult to choose a winner but we are delighted to announce that four year old William Booth's drawing of a snowman is the winning entry! William didn't write his address on the back of the card so we haven't been able to tell him personally that he won, if his mum or dad are reading this please get in touch with us by emailing jbillingham@cftrust.org.uk

The winning card will be available to buy in the 2009 Christmas catalogue and online from the CF shop later in the year.

Tuesday 24 March 2009

Thanks Scotmid!

We have been chosen as Charity of the Year by the retail group Scotmid. Their 260 stores across Scotland (Scotmid, Morning Noon & Night and Semichem) have all got CF Trust collecting boxes in them now. The staff also plan to hold raffles and will be taking part in sponsored events, so if you live near a Scotmid store, pop in to say "thanks" and put a pound in the tin for us.

We're always on the look out for new partners to work with, so if you think your company could help us by adopting us as their charity, or by matching funds raised by you, why not drop an email to Gemma on gwoodward@cftrust.org.uk who'll be happy to help you.

Tuesday 17 March 2009

Whistling for CF

Lots of our fundraisers do unusual things to raise money for us and Johanna Branston is no exception. She will be taking part in the World Whistling Championships this April and you can see her whistling at the link below!


Friday 13 March 2009

Taking on Kilimanjaro

Did anyone see the Big Red Nose Climb documentary last night? What an amazing and challenging experience, well done to all the celebs who took part especially our patron Ben Shephard.

If you were inspired by the celebs last night remember you can sign up to take on Kilimanjaro for the CF Trust, like our fundraising manager for Yorkshire Tina Davis-Johnstone who is tackling Kili in August.

To sponsor Tina go to www.justgiving.com/tinadavis5

To find out more about our Kilimanjaro Trek go to

Monday 9 March 2009

Check out Kate in Tesco magazine

If you are a Tesco customer pick up a copy of their free magazine next time you are doing the weekly shop - the cover star is Kate Smith one of our ambassadors.

Here's some more info

Doesn't she look gorgeous? Well done Kate and thank you!

Thursday 5 March 2009

Prescription Charges

The British Medical Association has called on the government to make prescription charges free for everyone in England.

The Department of Health is currently reviewing the list of long-term conditions that are exempt from prescription charges. In its submission to the review, the BMA says that extending exemptions without a fundamental overhaul of the whole system will simply “create a new set of arbitrary ‘winners’ and ‘losers’”.

What do you think about this issue? Should everyone get free prescriptions? Or just those with long-term conditions?

Answer our poll here

Tuesday 3 March 2009

Prima magazine

Thanks to Mandy Kloppers, a pwcf who shared her story with Prima magazine this month. In shops now!