Monday 27 February 2012

Cystic Fibrosis Week 2012 - 29 April - 5 May

It’s on its way! And I’m back – hijacking the blog again! You may remember me from last year – I work at the Cystic Fibrosis Trust as part of the fundraising team and one of my three children (Beth, age 11)  has CF.

Over the past few months many of you have been helping to create the new strategy for the CF Trust – Living Longer, Living Better. This shows many of the ways that we are all working to improve the lives of people living with Cystic Fibrosis. It’s fantastic to see the path laid out in front of us and so exciting to be part of the journey.

To make these changes will take lots of small steps, by lots of people, so why not join me and the CF Week team, having lots of giggles as we wind our way to CF Week 2012.

There are so many ways you can take part this year, whether you want to fundraise, raise awareness or campaign for change – there really is something for everyone! Claire Francis, our Policy and Public Affairs Manager, is busy creating some survey questions and planning our parliamentary campaign so check out our Cystic Fibrosis Week website for regular updates on how you can get involved with this.

I’ve been chatting with lots of our supporters over the past few months to find out what you would like to get from the week. So, we have a wide range of events you can sign up to, or help and information on how you can organise your own event or raise awareness. Email me at with your news, comments or queries; we’d love to help!

Join in, have fun, change lives – you know you want to!

Nikki x