Wednesday 30 June 2010

Celebs on Twitter support CF awareness

Fundraiser and mum of two boys with CF Lorraine Barnes has been working hard to raise awareness of CF through her special 'Get it off your chest' T-shirts. She's been tweeting lots of celebs to ask them to wear her t-shirts and the results have been great - Simon Pegg, Ben Shephard, Ali Bastian, Duncan Bannatyne and Mark Hamill aka Luke Skywalker have all lent their support.

Actress Kathryn Drysdale has also backed the campaign by taking the T-shirt with her to celeb parties and last night got Frank Lampard and Boris Becker to pose for her!

Special thanks to mum and fundraiser Alison Dillon who has also been recruiting celebs to wear t-shirts.

You can view the celebs who've sported the t-shirt so far on our facebook gallery and you can also follow Lorraine and the CF Trust on Twitter.

Tuesday 29 June 2010

Close to the Edge

Yorkshire man Jonathan Skinner will be raising vital funds for the Cystic Fibrosis Trust this August by motorcycling 4,000 miles around the entire coastline of the British Isles.

27 year old Jonathan embarks on his amazing challenge on August 1st from Harrogate and will be riding 400 miles a day for two weeks camping overnight at stops along the route. He heads north from Harrogate with his first spot in Fife.

Jonathan has chosen to raise money for the Cystic Fibrosis Trust because his aunt has Cystic Fibrosis (CF). He said: “I wanted to do something to raise money for my aunt and I love motorbikes so this seemed like the perfect challenge. I was inspired by Ewan McGregor and Charley Boorman who motorcycled round the world. Although I’m not covering as much ground as them it’s still going to be a tough challenge, and has only been completed by a handful of riders.”

Jonathan has already raised nearly £6,000 for the CF Trust. To find out more and donate go to

Tuesday 8 June 2010

Making a difference

Last year we came into contact with some people called See The Difference. They had recently set themselves up as a charity that helps other charities through video fundraising. The idea is simple – you watch video appeals on their website and donate to any causes that you like. The twist is, you then get feedback from the people you helped, so you can see the difference you’ve made.

We decided to ask for money for start-up grants, so we can help more people with CF make a home for themselves and gain independence. A young man called Alex who had received a start-up grant kindly agreed to be filmed, so we made a video about him and his fridge. The website has now been launched and our appeal is, at the time of writing, one of the most viewed. You can watch it – and, of course, donate to it – on the See the Difference website