Tuesday 15 December 2009

Want to book some great entertainment for your fundraising event?

A fantastic group of singers from Eton College are offering their services to CF Trust fundraisers.

The Incognitos are a close harmony group made up of 9 singers. The group is entirely organised and rehearsed by students, who practise together for over 6 hours each week. This year they are performing on various occasions, from a tour of Japan, to corporate drinks parties around London. The music they perform is often tailored to suit a particular event but they are renowned for their ambitious and imaginative arrangements of pop songs such as Michael Jackson’s ‘Billie Jean’ or Take That’s ‘Patience’. This year they are giving all money raised from their concerts and events to the Cystic Fibrosis Trust.

They are available to sing at any event, please contact d.leigh@etoncollege.org.uk for more information.

Tuesday 1 December 2009

About our committees

We’ve just had the second yearly meetings of our research advisory and medical advisory committees. Each one is a group of expert CF scientists and clinicians who give up their time to provide advice on issues affecting the CF community and to review research currently underway. There is also a person with CF and a parent of someone with CF in each group ensuring we’ve considered everything from the family perspective.

Items discussed included work on CF clinical trials in the UK and in Europe, a review of the work of the UK CF Microbiology Consortium, swine flu and the CF Registry – a clinical database of people with CF in the UK.

A lot of the info discussed will make it into CF Today at some point so keep your eyes peeled.