Thursday 30 April 2009

Big Bounce Humber Bridge

On Sunday, whilst lots of people were running the marathon, others were taking part in a different sort of fundraiser - a sponsored mile long space hopper bounce across the Humber Bridge.

You can see the bouncers in action here

Friday 24 April 2009

Good luck to all our runners

Good luck to all of our intrepid runners who are taking part in the London Marathon and Tresco Marathon this weekend. Thanks very much for all the months of training, sweat and pain and for raising money for the CF Trust.
See you at the finish line!

Thursday 23 April 2009

Come on Yorkshire!

We're looking for people to take part in our annual running event, the Yorkshire 10k, at Newby Hall near Ripon.

The event, a trail and off road race around Newby Hall Estate, is now in its fifth year and raises vital funds for gene therapy research.

There's also a 2k and pupils from Skelton and Newby Hall Primary School have already signed up to take part.

Schools who enter 4 or more children can win the schools trophy, which is given to the team with the fastest combined time.

Friday 17 April 2009

The Observer this Sunday

Check out The Observer magazine on Sunday for an article on gene therapy for CF.

Have a great weekend!

Wednesday 15 April 2009

Shameless star takes on the GMR!

Actor Ciaran Griffiths (Mickey from Shameless) is taking on the BUPA Great Manchester Run for the CF Trust on Sunday 17 May.

The run, which starts and finishes in Manchester city centre, is one of the world’s fastest growing running events and 33,000 runners took part last year.

Ciaran said ”I’ve been getting into my jogging so I’m quite looking forward to it – and the CF Trust have promised me a massage at the end so that makes it worth my while!”

Tuesday 14 April 2009

Allison in the Daily Mail

Allison John, who has CF and has had four organ transplants, tells her amazing story in the Daily Mail

She also appears in the BBC series Lifegivers, which goes out this week at 9.15am each day.

Well done Allison!

Thursday 9 April 2009

Read more about our victory at Twickenham yesterday!

Our annual charity rugby match at Twickenham was a great success yesterday, raising an amazing £20,000. Rob Andrew, the Rugby Football Union's elite rugby director and former England fly half, Sports Minister Gerry Sutcliffe and CF Trust patron Ben Shephard all took part.

Find out more about the match here.
Check out some of the great photos taken during the day.

Tuesday 7 April 2009

Prescription Charges in Scotland

If you live in Scotland and have to pay for your prescriptions you might be interested to know that the cost of a single prescription item has been lowered from £5 to £4 and the cost of a Prescription Pre-payment Certificate (PPC) has been lowered from £48 to £38 for 12 months and £17 to £13 for four months. Further annual reductions are planned to remove charges altogether by April 1, 2011.

For more info go to

Thursday 2 April 2009

Good Luck Alex!

Musical genius Alex Stobbs, star of last year’s A Boy Called Alex documentary, will be undertaking an amazing challenge on Sunday 5 April when he conducts the Rodolfus Choir performing Bach’s St Matthew Passion.

To find out more go to