Thursday 13 June 2013

The European Cystic Fibrosis Society Conference: Day 1

Registry Manager Elaine Gunn reports on the first day of the ECFS in Lisbon.

Here in Lisbon the sun is shining but the meeting rooms are air conditioned. As part of my role I sit on the European Registry Data Quality Control Group. There are approximately 21 countries who enter data to the European report which looks at country comparisons. With all these different countries it is important that data is compatible so that this work can be carried out.

Today we are finalising the latest data fields. Later this evening it is the Welcome Reception where everyone meets to listen to the opening plenary, this year given by Prof Kevin Webb from Manchester. Tomorrow is another day with European meetings and a great symposium about data and registries.

Will tell you all about my day tomorrow. 

Elaine Gunn RGN DPA Registry Manager

The welcome reception thanked the European CF associations. A cheque was presented to the ECFS for 120,000 euros.

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